{"id":3376,"date":"2024-08-23T05:30:48","date_gmt":"2024-08-23T05:30:48","guid":{"rendered":"https:\/\/magazines.uthscsa.edu\/schools\/?p=3376"},"modified":"2024-08-26T19:31:28","modified_gmt":"2024-08-26T19:31:28","slug":"amplifying-the-voices-of-hispanic-texans","status":"publish","type":"post","link":"https:\/\/magazines.uthscsa.edu\/schools\/2024\/08\/23\/amplifying-the-voices-of-hispanic-texans\/","title":{"rendered":"Amplifying the voices of Hispanic Texans"},"content":{"rendered":"

The power of community pl\u00e1ticas for dementia care<\/strong><\/h2>\n

\"SaraIn summer 2023, the School of Nursing<\/a> launched a series of community pl\u00e1ticas in South Texas, aiming to gather insights directly from residents about their needs and experiences with dementia.<\/p>\n

These pl\u00e1ticas, or discussions, are vibrant cultural events featuring festive d\u00e9cor, music and food. They draw attendees from diverse backgrounds, including local residents, community health workers and health professionals. Their creation was sparked from an evolution of work Sara Masoud, PhD, MPH<\/a>, and her team initiated during her time with the school\u2019s Caring for the Caregiver program<\/a>, established in 2016 by Carole White, PhD, RN, FAAN, and a team from the School of Nursing.<\/p>\n

According to Masoud, assistant professor at the School of Nursing, there\u2019s a significant disparity in dementia research representation.<\/p>\n

\u201cFor example, Hispanics are one and a half times more likely and African Americans are twice more likely than non-Hispanic white individuals to develop dementia, but they are not well-represented in the related data,\u201d she said.<\/p>\n

With Hispanic Texans now the state\u2019s largest demographic, Masoud\u2019s and her team\u2019s work becomes even more crucial. The pl\u00e1ticas serve as platforms for residents to voice their needs.<\/p>\n

Hispanics are 1.5 times more likely to develop Alzheimer\u2019s compared to non-Hispanic white individuals<\/p><\/blockquote>\n

\u201cWe hear things like, \u2018We need ambulance service and fire marshals.\u2019 What we think of as basic resources, not necessarily dementia care, are what communities want first,\u201d she said. \u201cWhen we asked South Texans what they think is important to study, among the issues they identified they wanted to address was to raise awareness of dementia in their communities and find ways to make getting a diagnosis easier.\u201d<\/p>\n

Masoud said the South Texas region is one of the hardest hit in the country in terms of having the greatest number of counties with the highest incidence of Alzheimer\u2019s disease.<\/p>\n

\u201cThe prevalence of dementia in some counties of South Texas is almost a quarter of their population. Programs across our university and organizations in the community are working to address this,\u201d she said.<\/p>\n

Residents in South Texas also expressed a desire for nonpharmacological solutions for dementia\u2019s behavioral symptoms.<\/p>\n

\u201cOften when people think of dementia research, they think it is primarily to inform drug development to treat Alzheimer\u2019s disease, but we are hearing from those living in communities that are most impacted by dementia and they are not even there yet. They\u2019re in need of programs, resources and interventions, not necessarily only pharmacological ones. Research in all of these areas is incredibly important,\u201d Masoud said.<\/p>\n

Masoud, who is Palestinian, said she understands the struggle of representation, as the category of Middle Eastern and North African has only recently been added to the U.S. census, which is another gap of representation in research. She is currently expanding her research to include focus on building evidence around experiences of dementia among Arab and Arab American communities in Texas.<\/p>\n

\u201cUp until now, people like me essentially didn\u2019t exist in scientific representation,\u201d she said. \u201cSo, we still have work to do, but hearing directly from the people in our region supports us to be leaders in the research and the care that impacts us.\u201d Visit UTCaregivers.org<\/a> to join the conversation.<\/p>\n","protected":false},"excerpt":{"rendered":"

Community pl\u00e1ticas in South Texas are empowering citizens to help shape dementia care. Sara Masoud, PhD, MPH, and her team are hosting discussions that highlight the critical needs of the region\u2019s largest demographic.<\/p>\n","protected":false},"author":653,"featured_media":3423,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[5,12],"magazine":[24],"issue-year":[58],"featured-story":[36,37],"class_list":["post-3376","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-community","category-research","magazine-tribute","issue-year-58","featured-story-homepage","featured-story-landing-page"],"yoast_head":"\nAmplifying the voices of Hispanic Texans - Magazines of the Schools at UT Health San Antonio<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/magazines.uthscsa.edu\/schools\/2024\/08\/23\/amplifying-the-voices-of-hispanic-texans\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Amplifying the voices of Hispanic Texans - Magazines of the Schools at UT Health San Antonio\" \/>\n<meta property=\"og:description\" content=\"Community pl\u00e1ticas in South Texas are empowering citizens to help shape dementia care. 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