{"id":3372,"date":"2024-08-23T06:00:57","date_gmt":"2024-08-23T06:00:57","guid":{"rendered":"https:\/\/magazines.uthscsa.edu\/schools\/?p=3372"},"modified":"2024-08-26T19:35:44","modified_gmt":"2024-08-26T19:35:44","slug":"a-nurses-mission","status":"publish","type":"post","link":"https:\/\/magazines.uthscsa.edu\/schools\/2024\/08\/23\/a-nurses-mission\/","title":{"rendered":"A nurse’s mission"},"content":{"rendered":"

Empowering African American faith communities with dementia outreach<\/strong><\/h2>\n

By Kristen Zapata<\/p>\n

\u201cAfrican Americans are twice as likely to develop dementia than non- Hispanic white Americans \u2014 that\u2019s a higher risk than any other racial group,\u201d said Fayron Epps, PhD, RN, FGSA, FAAN<\/a>, a community-engaged research nurse and professor at The University of Texas Health Science Center at San Antonio School of Nursing<\/a>. \u201cThe Black community doesn\u2019t even realize the extent of how dementia disproportionately affects them. They often adopt a common belief that short-term memory loss, slight confusion and a little agitation is a normal part of aging, not a sign of a more serious condition.\u201d<\/p>\n

Epps, who joined the university in January 2024 as the inaugural Karen and Ronald Herrmann Distinguished Chair in Caregiver Research, said she largely works within the African American community because it is the most-affected population for dementia, yet it is often underrepresented in related research.<\/p>\n

In response, Epps has rooted herself within national and grassroots organizations, government agencies and faith communities to create tangible resources where people are searching for them. For many, this includes places of worship. And in the face of adversity, African American churches have historically served communities as places of hope, prayer and solidarity as well as a social hub for reliable guidance and information.<\/p>\n

\u201cFaith communities are an integral part of the health care team,\u201d said Epps. \u201cEven if we don\u2019t attend every Sunday, we lean on the church for resources and answers. Right now, many churches don\u2019t have the answers and are unaware of what dementia is. We are leading a movement and equipping places of worship with the resources needed to better support their parishioners facing dementia.\u201d<\/p>\n

\"Left
Left to right: Tasha Wilson, Fayretta Braggs, Mildred Magee and Shanna Magee. Photo credit: Lona Jones Photography<\/figcaption><\/figure>\n

Together, best friends Tasha Wilson and Shanna Magee navigated the challenges of caring for their mothers, who both faced a dementia diagnosis.<\/strong><\/p>\n

Reaching the most affected
\n<\/strong><\/h3>\n

Based on feedback Epps received firsthand from caregivers and people living with dementia, she founded Alter<\/a>, a program to train faith leaders and caregivers about the condition and provide ongoing support through a network of certified \u201cdementia-friendly and inclusive faith\u201d partners. The program offers stipends to Alter partners for the sustainability of dementia-support services. Services include guest speaker events, memory and hearing screenings, health education materials, audio and visual media, research-awareness kits and community information.<\/p>\n

\u201cI always say that you can\u2019t beat a best practice,\u201d said the Rev. Jeff Carr, leader of an Alter partner church in Nashville, Tennessee. For the past two years, Carr and what he calls his mini-Alter team have been working to make their congregation dementia-friendly.<\/p>\n

\u201cWe put on performances for our elders and play games with them. This year, we established a new memory caf\u00e9 program, which came directly from Alter,\u201d he said. \u201cThey are a safe way for our elders to gather socially with their care partners and build support networks. We are expanding these to occur quarterly.\u201d<\/p>\n

The congregation has also implemented shortened six-minute church services.<\/p>\n

\u201cIt\u2019s amazing because it\u2019s geared toward people who may not have long attention spans or who, because of dementia or mild cognizant impairment, may not be able to focus, but they still want to get some spiritual food,\u201d Carr said.<\/p>\n

Carr\u2019s team also partners with a local nursing home that allows the delivery of gifts and information to residents and their families.<\/p>\n

Faith leaders use their position within the community to address the stigma of dementia and provide evidence-based information that can elevate a family\u2019s quality of life, Epps said. Currently, 85 churches in 14 states participate in Alter, but she plans for expansion in every state.<\/p>\n

\u201cNurse-led community engagement is a great chance for health systems to really connect with and earn the trust of the Black community. By expanding on the efforts of faith community nursing, like Alter, health systems can step up and offer their own special resources to provide advocacy and support tailored specifically for African Americans,\u201d Epps said.<\/p>\n

Faith in action
\n<\/strong><\/h3>\n

Alter is only one of multiple projects Epps and her team at the Faith Village Research Lab manages to improve access to dementia resources and conduct research through communities of faith.<\/p>\n

Tasha Wilson, her husband, Kevin, and her mother, Fayretta Braggs, were connected to the Faith-Based Home Activity Toolbox, called the Faith-HAT study<\/a>, through Epps. The family qualified for the three-month study that collected information from activities they performed, survey responses and caregiver journal entries.<\/p>\n

Braggs had initially suffered a stroke in 2021, which left significant damage to her brain. A diagnosis of vascular dementia hit the Wilsons hard as they became full-time caregivers and grappled with the complexities of navigating Braggs\u2019 health care, insurance and suitable support services. By participating in Faith-HAT, the family found just what they needed: solace and support.<\/p>\n

\u201cWe loved the experience because it connected us with creative ways to spend time with God together as a family,\u201d Tasha Wilson said. \u201cIt was in those moments that I didn\u2019t feel as angry about mom\u2019s condition and was able to focus back on allowing God to be present in that moment.\u201d<\/p>\n

The toolbox provided guidance on dementia-friendly music, videos, Bible scriptures and activities. The Wilsons created a routine using the tools, especially the selection of uplifting gospel music.<\/p>\n

\u201cKevin and I would use the music playlist for the morning as we would get mom ready for adult daycare. We especially used it in the doctor\u2019s office or during hospital visits to keep her calm. Depending on the day, we would throw in the coloring and puzzle activities, but we stayed consistent with having dementia-friendly videos as our family time,\u201d Tasha Wilson said.<\/p>\n

Fayretta Braggs died peacefully surrounded by family in 2023, but the ability to lean into their faith while having practical support is a happy memory the Wilsons treasure.<\/p>\n

\u201cThis box gave us memories that I will cherish for a lifetime as we remember mom,\u201d Tasha Wilson said.<\/p>\n

The outcomes from the Faith-HAT study have not yet been published, but the team anticipates feedback will be overwhelmingly positive.<\/p>\n

Finally being seen
\n<\/strong><\/h3>\n

The Wilsons now lend their experience and testimony to Caregiving While Black<\/a>, an online course developed through Epps\u2019 team meant to teach African American caregivers how to navigate health care systems and home life and to manage their own self-care.<\/p>\n

The six-week course includes participant interviews that will allow the team to examine each caregiver\u2019s sense of confidence in providing care for their loved one.<\/p>\n

\u201cJust having quality resources in this process is so vital and so valuable,\u201d Tasha Wilson said. \u201cI am so thankful for Dr. Epps.\u201d<\/p>\n

Epps is proud to know the impact these programs are having.<\/p>\n

\u201cFor the first time ever, a lot of these communities feel they are finally being seen,\u201d said Epps. \u201cI think that\u2019s the importance of my work. I hear them, I\u2019m responding to them and I\u2019m bringing it to them first. The communities I work with are now able to advise and influence future programs that can help all.\u201d<\/p>\n

For more information about Epps or her projects, email EppsF@uthscsa.edu<\/a>.<\/p>\n

\n

\"AnitraAnitra Mostacero<\/span><\/strong><\/h2>\n

Anitra Mostacero is a retired U.S. Air Force senior master sergeant, a mother, a <\/span>recent grandmother, reigning Miss Meridian Idaho 2024 and a person living with <\/span>young-onset dementia. She was diagnosed in her early 40s.<\/span><\/p>\n

Mostacero met Fayron Epps, PhD, RN, FGSA, FAAN, through her work with the Black Dementia Minds support group through the National Council of Dementia Minds<\/a>.<\/p>\n

\u201cMy focus is to combat stigma and share information about people living with dementia,\u201d Mostacero said. \u201cWe advocate like crazy. We speak to medical students, caregivers and church parishioners on how to live well and manage challenges. Dr. Epps is an important bridge for us and the council\u2019s advisory group. Her counsel is so important for everything we do.\u201d<\/p>\n","protected":false},"excerpt":{"rendered":"

Fayron Epps, PhD, RN, a distinguished researcher at UT Health San Antonio’s School of Nursing, is addressing the disproportionate impact of dementia in the African American community. Through her program, Alter, she equips faith leaders and caregivers with essential resources, cultivating dementia-friendly environments in churches and communities.<\/p>\n","protected":false},"author":653,"featured_media":3373,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[5,12],"magazine":[24],"issue-year":[58],"featured-story":[36,37],"class_list":["post-3372","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-community","category-research","magazine-tribute","issue-year-58","featured-story-homepage","featured-story-landing-page"],"yoast_head":"\nA nurse's mission - Magazines of the Schools at UT Health San Antonio<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/magazines.uthscsa.edu\/schools\/2024\/08\/23\/a-nurses-mission\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"A nurse's mission - Magazines of the Schools at UT Health San Antonio\" \/>\n<meta property=\"og:description\" content=\"Fayron Epps, PhD, RN, a distinguished researcher at UT Health San Antonio's School of Nursing, is addressing the disproportionate impact of dementia in the African American community. 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