{"id":3370,"date":"2024-08-23T07:30:16","date_gmt":"2024-08-23T07:30:16","guid":{"rendered":"https:\/\/magazines.uthscsa.edu\/schools\/?p=3370"},"modified":"2024-08-26T19:35:03","modified_gmt":"2024-08-26T19:35:03","slug":"extending-a-nurses-reach","status":"publish","type":"post","link":"https:\/\/magazines.uthscsa.edu\/schools\/2024\/08\/23\/extending-a-nurses-reach\/","title":{"rendered":"Extending a nurse’s reach"},"content":{"rendered":"

Technology-enhanced holistic care programs allow for continuity of care outside the clinic for cancer survivors and their caregivers<\/strong><\/h2>\n

By Norma Rabago<\/p>\n

Two significant events in Lixin (Lee) Song\u2019s<\/a> life influenced her research in cancer survivorship. Both were equally personal.<\/p>\n

Song, PhD, RN, FAAN, is vice dean of research and scholarship at UT Health San Antonio\u2019s School of Nursing<\/a>. Before pursuing her doctoral degree, Song\u2019s work in obstetrics and gynecology medicine centered on \u201cthe happy, beginning part of life,\u201d as she describes it. That led her to work with a University of Michigan community program helping uninsured and economically disadvantaged women receive free screenings for breast and cervical cancer.<\/p>\n

\u201cThe Healthy Asian Americans Project was my first job in this country,\u201d said Song, a Chinese national. \u201cWe would drive women to the clinic, serve as a translator and help them get a free screening to ensure they were healthy.\u201d<\/p>\n

She said the program was successful and attracted statewide attention. However, she noticed something about the women diagnosed with cancer.<\/p>\n

\u201cEven though it was a wonderful program, I realized the challenges women faced after the diagnosis. They would get the free screening, but with this population of women, they didn\u2019t have insurance, didn\u2019t speak English or drive,\u201d she said. \u201cOnce they got the diagnosis, they were so scared. People needed more support after the diagnosis.\u201d<\/p>\n

Another motivation for Song\u2019s interest in cancer survivorship: witnessing the devastating impact of lung cancer on a close friend.<\/p>\n

\u201cShe was healthy and then suddenly diagnosed with end- stage lung cancer. She had some miserable complications after the diagnosis,\u201d Song said. \u201cI realized there are huge issues with family-provider communications and symptom management, how to talk to families about the impact of a cancer diagnosis and treatment and reducing the impacts of cancer symptoms.\u201d<\/p>\n

These experiences inspired Song to shift her focus to pursue doctoral training in cancer survivorship and supportive care. Drawing on her expertise in women\u2019s health, Song\u2019s research now centers on enhancing the health outcomes of cancer patients and their family caregivers by developing innovative, technology-enhanced holistic care programs that prioritize the well-being of both patients and their families.<\/p>\n

Enhancing patient and family care<\/strong><\/h3>\n

In a report from the American Cancer Society, close to 17 million Americans with a history of cancer had survived it in 2019. By 2030, that number will rise to 22.1 million. Yet, as the survivor count increases, the number of home health aides and physicians is decreasing, according to Song. The Association of American Medical Colleges predicts that, by 2036, there will be a shortage of up to 86,000 physicians in the U.S., which will leave the responsibility of cancer patients\u2019 home care largely to their family members, Song said.<\/p>\n

Employing a variety of technological tools, including fitness trackers and audio and radiofrequency sensing, Song aims to bridge the gap between hospital care and community-based support. Her goal is to \u201cextend nurses\u2019 helping hands\u201d beyond clinical settings, enabling them to deliver patient and family-centered care that effectively addresses their needs during self-management and family care.<\/p>\n

While Song\u2019s postdoctoral training expanded the focus on supportive care for patients and caregivers managing many types of cancer, she began her research as a doctoral student with prostate cancer patients.<\/p>\n

The standard of care for localized prostate cancer patients is active surveillance, prostatectomy and radiation therapy \u2014 with or without testosterone deprivation \u2014 all of which brings its own set of challenges. These include hot flashes, urinary incontinence and, for some patients, sexual dysfunction \u2014 effects patients were reluctant to discuss.<\/p>\n

The amount of information a newly diagnosed patient has to deal with, from treatment options to the uncertain benefit of survival, can overwhelm a patient.<\/p><\/blockquote>\n

\u2014 Lixin Song, PhD, RN, FAAN<\/p>\n

\"Dr.
Lixin (Lee) Song, PhD, RN, FAAN<\/figcaption><\/figure>\n

Improving health literacy<\/strong><\/h3>\n

To help patients and spousal caregivers navigate these challenges, Song launched the Prostate Cancer Education and Resources for Couples (PERC) study, which served as a couple-centered symptom management program. Couples used online education and additional resources to learn how to manage the patient\u2019s symptoms at their own pace.<\/p>\n

Song expanded this effort to demonstrate the potential advantages of integrating e-health programs such as PERC into the electronic medical record, benefiting a wider range of patients and their families during this challenging phase.<\/p>\n

She then initiated the Prostate Cancer Information, Communication and Support Program study. This was designed to provide accessible information on prostate cancer, treatment options and transition to home care, catering to individuals of all health-literacy levels and educational backgrounds.<\/p>\n

\u201cThe amount of information a newly diagnosed patient has to deal with, from treatment options to the uncertain benefit of survival, can overwhelm a patient,\u201d Song said.<\/p>\n

Using credible sources of information, such as Medline Plus, and natural language-processing technology, Song used various text and video recordings to help those with different learning styles consume information derived from clinical guidelines and research evidence.<\/p>\n

\u201cWe used recordings to help patients and their families remember their discussions with health professionals about treatment options and related information. Natural language processing was then used to generate hyperlinks for terminology that patients didn\u2019t understand so they could learn more,\u201d she said.<\/p>\n

Achieving balance<\/strong><\/h3>\n

Since joining the School of Nursing in 2022, Song has continued her research with cancer patients. She is actively adapting her intervention programs to better serve the local cancer population and their families, who are predominantly Hispanic.<\/p>\n

The Center for Holistic Care of Cancer Patients and Families<\/a> is currently under renovation within the school as a space to leverage this ongoing research. Discussing her vision for the project, Song expresses her<\/p>\n

desire to assist caregivers in achieving a better balance between their own needs and those of their loved ones, emphasizing the importance of developing a program that seamlessly integrates with routine clinical care.<\/p>\n

Reflecting on a poignant encounter during a previous study interview, Song recounted the experience of a participant discussing her husband\u2019s surgery and subsequent doctor visits.<\/p>\n

\u201c[The wife] ended up having emergency surgery, and then she discharged herself to make sure she was available for her husband,\u201d she said. \u201cI was shocked, but not surprised. This is why we have to treat cancer survivorship as a family issue rather than an individual issue.\u201d<\/p>\n","protected":false},"excerpt":{"rendered":"

From aiding women in need to witnessing a friend’s battle with cancer, Lixin (Lee) Song’s journey led her to develop holistic care programs. Song, PhD, RN, aims to bridge the gap between the quality of care in the hospital and at home, improving the lives of cancer patients and their families.<\/p>\n","protected":false},"author":653,"featured_media":3371,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11,12],"magazine":[24],"issue-year":[58],"featured-story":[36,37],"class_list":["post-3370","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-patient-care","category-research","magazine-tribute","issue-year-58","featured-story-homepage","featured-story-landing-page"],"yoast_head":"\nExtending a nurse's reach - Magazines of the Schools at UT Health San Antonio<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/magazines.uthscsa.edu\/schools\/2024\/08\/23\/extending-a-nurses-reach\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Extending a nurse's reach - Magazines of the Schools at UT Health San Antonio\" \/>\n<meta property=\"og:description\" content=\"From aiding women in need to witnessing a friend's battle with cancer, Lixin (Lee) Song's journey led her to develop holistic care programs. 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